When parents and families find themselves with a baby in the NICU, they often times feel isolated and alone. Despite the staggering statistic that 1 in 9 babies are born too soon, too small or too sick to make it on their own, families report over and over that they feel very alone on their journey.
Patient+Family Care loves to share resources and helpful websites that help parents most during their stressful and difficult time. Read below to see what recommendations we have today! We already shared 5 in a previous post, so today we are sharing 5 more!
Do you have additional resources you want to make sure we know about so we can share them in future posts? Comment and let us know!
#1 Peek-A-Boo ICU
Parents are often overwhelmed and full of fear of the unknown when their child winds up in a neonatal intensive care unit. They are thrown into this new world and expected to not only live in a medical world, but be a parent there too! Parenting a baby shouldn't be that way as parents should be able to rejoice and celebrate their new addition. Having a new baby is supposed to be a happy time, a major chapter in the book of life..... but when prematurity and the NICU get involved, all of that changes.
Peek-A-Boo ICU is here to empower parents with information that will help them not only understand their premature baby, but also help them learn what they can do so their baby will thrive beyond the NICU days. They take the focus off of some of the medical aspects and put the focus back on the baby and parent's relationship with their baby. They help parents and giving them an opportunity to celebrate their baby while understanding their needs as they grow and develop in the NICU.
Visit their website at http://www.peekabooicu.com/ to learn how they are helping erase the stressful medical footprints the NICU can leave in the minds of parents, and replacing them with special memories that leave lasting imprints in their hearts!
#2 NICU Helping Hands
NICU Helping Hands was created in 2010 when the Forth Worth, Texas area was overwhelmed with a need for support of families in the NICU; both educational support and emotional support.
Since opening their doors, NICU Helping Hands has not only served their local community, but has the privilege of serving families across the country who are looking for education, support and a helping hand during one of the most difficult journeys they will ever make.
To find out more about NICU Helping Hands, and their 5 key programs, visit their website today at https://www.nicuhelpinghands.org/.
#3 Me Two Books
Children that have survived the NICU journey, often don't realize what an amazing story they have. at the start of their life.
After being disappointed in the lack of children's books about the NICU for her premature twins, Ali Dunn decided to write and illustrate her own! Me Two Books creates children's books that celebrate what makes each child wonderfully unique. The books feature preemies/NICU babies, twins, kids with disabilities and others that are not represented by the traditional publishing industry.
The books are all written and illustrated by Ali herself, and are characterized by rhythmic, rhyming text along side colorful & charing illustrations. Get over to her website, to shop the wonderful collection of books, at https://www.metwobooks.com/
BabyFirst, which is supported by the amazing Medical Company Drager, offers high quality education and support for both NICU staff and families.
The birth of a child is wondrous, life-changing experience. It is typically a time of great joy and emotion, but it may also be a time of worries and questions. For parents of babies in the NICU, these worries and questions are amplified. Baby First realizes that while at times the experience may feel overwhelming, it helps when parents realize they are not alone!
Knowledge is key for parents to help them cope and understand their child's progress and growth. The more THEY understand their baby's needs, the more they can support them and feel more successful as a parent in such a foreign environment. They provide a wealth of information, support and resources ranging from education on the actual NICU to caring for babies after hospital discharge.
Take advantage of their wonderful and easy to use resources by visiting https://www.babyfirst.com/en/parents-corner/
#5 Hope for HIE
Not all babies are in the NICU due to prematurity. Some are sick or fragile for other reasons. There are a lot of issues that infants can face, and one of those conditions is Hypoxic Ischemic Encephalopathy (HIE).
Hope for HIE is deeply committed to providing comprehensive, personalized support for every family that finds themselves on a journey that includes an HIE diagnosis. Their community is worldwide and represents a variety of outcomes; from unaffected infants, to devastating loss.
This organization provides a variety of support outlets, both in person and on-line, and believe that by uniting the HIE community, they can ensure each person who is touched by this diagnosis finds a place they feel they can call home with access to real people who share their experience.
Hope for HIE is the largest collective of HIE help, HIE support, HIE resources and HIE families everywhere; serving families worldwide, completely run by parent volunteers. If you are a family that is/has experienced HIE with your child, or to find out how YOU can help, jump over to https://www.hopeforhie.org/ to learn more!
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Up next: Q&A with NICU Parents