We are looking for a few champions..... are you one of them?
Patient+Family Care has developed a unique and one of a kind on-line peer-to-peer support community, that is accessible to NICU families 24/7. It was developed by our founder after she spent years working with NICU families on the front line and realized that there were so many barriers to making in person support groups and family activities in the unit successful.
"We would spend so much energy and time trying to find the right day, the right time, the right location and the right activity to get good attendance at our parent events because we know how important peer-to-peer support is for NICU families! Yet no matter what we did, attendance was always really low, and we continued to hear from parents that they felt isolated, fearful and desperately wanted connection with others. What I realized, and what completely made sense, is that if parents were at the hospital, they wanted to be with their baby. And we should encourage that! So we needed to get creative and find an alternative way to provide the peer-to-peer support." ~ Sara Mosher
Sara took it upon herself to then talk to as many NICU families as she could and find out what it was they really wanted and what the gaps were in their NICU journey. Several themes came up in every interview:
This is where the NICU Parent Support Community idea started~ and has now come to fruition. Individual parents have participated in this on-line program and the pre and post data has been impressive. Parents are asked to take a survey before and after they participate and there is remarkable improvement in:
We now are looking for units who are interested in offering this community to their families as a peer-to-peer support network and to allow us to collect the same pre and post data to see if the same results are seen. We believe that providing this component of psychosocial support to families will INCREASE SATISFACTION, DECREASE LENGTH OF STAY, and IMPROVE OUTCOMES for both parents and infants.
For the first 10 hospitals that sign up to participate, we will include our innovative and unique NICU Bingo Cards, that have been developed as a fun way to encourage families to practice self care while enduring the NICU journey. All hospitals that participate will also be recognized on our website and announced in future social media posts as our NICU Champions!
Contact Sara at firstname.lastname@example.org to get started and check out our ORGANIZATIONS page to learn more!